Hello! My name is Miles a 18 month old who was diagnosed with a rare disease called Menkes. Menkes disease occurs in only 1 per 50,000 to 100,000 live births in the United Sates, fewer than 100 cases per year. Most affected children pass by 3 years of age. Please browse my site and help me and my doctors research for a cure! If Menkes is identified and treated in the first 10 days of life, the prognosis is significantly improved. Please learn the symptoms!
Feel free to browse my site. (Check out my adorable photos!) I hope you come back often.